Since you managed to find us, chances are you know of other patient-oriented websites and blogs. I’m very interested in hearing about your experiences as a web-using patient. Here are some sites that I recommend.
The National Institute on Aging website has an excellent section, called “Talking with Your Doctor: A Guide for Older People.” The philosophy pretty much parallels what you find here and in our book–maybe with a little less detail, less reference to recent findings in the literature, and more tips geared to older patients, such as the suggestion to take your eyeglasses and hearing aid on your appointment.
The Agency for Healthcare Research and Quality (AHRQ)–which soon could become a major part of the Department of Health and Human Services, equal to the FDA, NIH, or CDC, or could instead become a victim of partisan budget wrangling–promotes an approach to patient-centered care called CAHPS. That’s short for “Consumer Assessment of Healthcare Providers and Systems.” The main idea is to use surveys of patients’ experiences to rate health care providers. Check it out. (Also see AHRQ’s quick tips.)
You know that major diseases have diverse websites and online discussion groups. A good example is that of the Leukemia and Lymphoma Society. One site that many people appear to find very useful is that of the Association of Cancer Online Resources (ACOR). Patient advocates with an interest in cancer care speak highly of it. Similarly, Caring Bridge is geared to helping patients and families, especially those affected by cancer.